Who we are

Rare4Schools was founded by Gavin and Joanne Hepherd-Hall in 2025.  As parents of a daughter with Hyperinsulinism they struggled with ensuring their daughters needs were met when she started nursery.  The anxiety and stress they felt in handing over care for their daughter was compounded by the lack of awareness and knowledge in the education setting of the condition.

They realised that without action there would be challenges with every school transition and place. Using their more than 4 decades experience in schools as teachers and senior leaders they decided to advocate for change. 

Gavin a former senior leader in a high school and head of maths and Joanne a former leader in English and Special Needs leader and specialist bring that experience along with their personal drive for change. Utilising the network and knowledge they have gained over the decades they bring an energy and enthusiasm to see long-term lasting change to education. The democratisation of education is a moral imperative.

Starting with the Rare Disease Framework they are on a mission to ensure that a rare disease is never a barrier to learning.

  • Sir Al Aynsley-Green Kt.

    Advisor

    Sir Al is the England's first children's commissioner and expert in compassion.  As a paediatric endocrinologist Sir Al led several initiatives at GOSH leading to his roles in government.  Sir Al brings this experience and care to Rare4Schools authoring the foreword in the Rare Disease Framework and providing support as an ongoing critical friend.

  • Loraine Midda MBE

    Advisor

    Loraine has a long history as a civil servant. A grandmother to a child with a rare condition Loraine understands the challenges the extended family face. Loraine's knowledge of the workings of Westminster are invaluable in supporting our advocacy work providing a guiding hand and direction in reaching out to parliamentarians.

  • Steven Baker OBE

    Advisor

    Steven Baker has provided support and advice throughout.  As the CEO of the peoples learning trust and experienced leader in alternative provision Steven's expertise ensures a robust approach to school recommendations. Steven provides a wealth of knowledge to engaging with the DfE and how to navigate the challenges we face.

Contact us

Want to know more? Get in touch today.